Wednesday, July 20, 2016

Time to get political? Yeah, I think so!




Now I didn't get to hear Ted Cruz's speech at the Republican National Convention today.  Princess Bear (PB) had bible study.   I was somewhat upset because I wanted to see how Cruz was going to handle the to endorse or not endorse issue.  I'm so damn sick and tired of the politicians that will turn on a dime and endorse a candidate that they were trying to convince the US population was evil incarnate only a short time earlier.  It might get you a cabinet seat but it also makes you look like a shameless sell out.  I've got no respect for the likes of Chris Christie and Bernie Sanders that turned around and endorsed those that they'd been trying to take out previously. 

I had really hoped that Cruz wouldn't endorse.  I don't think we're done seeing great things from Ted Cruz.  In a perfect world in an election cycle or two there will be a Cruz/Gowdey ticket.  I'm glad that Ted Cruz didn't cut off his nose despite his face and sell out.  From what I've read online Ted Cruz was booed extensively when he did not endorse Trump.  I say good on him!  He obviously still cares a great deal about the Republican party and wants to serve the country but doesn't want to stand for something he doesn't believe in.  His stock with me went up.  In a day and age when it's so damn hard to respect politicians this man still has my respect. 

On a side note since I did take so many blog breaks this year I didn't get to post any pics from when PB and I were volunteer workers at the Ted Cruz rally here in Peoria.  It was one of those things that they called and asked if I could do it and I initially said no because it would have been a conflict picking PB up from school.   Then I thought about it and decided it could be a pretty cool experience for PB.  I text her teacher and asked what she thought of PB missing an afternoon at school to volunteer and she was completely on board.  So we got to experience it and I'm so glad that we did.  There were also some perks.  The first row of the rally was reserved for volunteers so we had great seats!!!  Consequently we got to meet him and get his autograph.  It had a pretty profound affect on PB.  She's become more interested in the history of the country and what is going on with the election.  She is not a Trump fan at all but is learning that sometimes you have to vote for someone you don't like in order to not lose something important such as Supreme Court control.  There is a TV series on Fox News by Bill O'Reilly called Legends and Lies.   Last year it was about the Real West.  This season it's about the Patriots.  PB is loving watching this show and I'm loving that she's learning!  Here are some pics from the Ted Cruz rally.



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500 + 1

Wow!  I didn't realize it but yesterday's post was my 500th blog post!  I really wish it had been a happier one.  My posting this year has certainly been hit or miss and mostly miss.  The biggest reason for that is some health issues that have popped up.  I'm trying my best to get things results.  I'm damn sick and tired of feeling sick and tired.  I'm still have big issues with my sinuses.  The referral is in for me to see the ENT and it can't happen soon enough!  Last week I had a sinus infection that morphed into an upper respiratory infection.  Hello Prednisone.  That led to some problems as well.  About 2 months ago I had a horrid migraine.  For a week afterward I had severe pain in my neck and up the back of my head and around my left eye.  After sucking it up for a week I went to the Dr.  Turns out the neck/head pain was from my sinuses (seriously could the be more of a pain in the a$$?!!?)  The Dr. was somewhat worried about the eye pain and did a neuro exam but things seemed fine.  They they decided that an emergency appointment with the opthamologist was a good idea.   So there I was was in the waiting room with my Dad & Princess Bear (PB).  My dad decided me driving after having my eyes dilated was a scary prospect so he drove.  I go back and am explaining why I'm there and they start doing stuff to my eyes.  At one point the nurse, tech, whatever the heck says I'm going to go ask Dr. something I'll be right back.  Ummm- ok.  Little hairs on the back of my neck raise up.  She comes in and says the Dr. said to go ahead and dilate your eyes and he'll see you then.  Ok.  So we're off and running.  Well it turns out that my IOP (intraocular pressure) was high like much higher than it had even been at my last exam just 2 months earlier.  The good news is that it had not affected the optical nerve but it was still dangerously high and I was in danger of losing my vision.  CRAP!!!  I kind of like working with all 5 senses.  The Dr. did some more tests including running this thing all over my all ball checking to see how my eye drains.  It's so freaking weird to know that something is on the surface of your eye and you can't feel it!!!  So the first course of action was to start eye drops that lower the pressure inside my eye.  I had some side effects so the timing was switched around but all in all the drops were ok.  It is a bit freaky when I use the drops every once in awhile the liquid from inside my eye really starts exiting and it looks like I'm crying.  I went in for a recheck 2.5 weeks later and the drops were working.  My numbers went from being in the 30's (I think both eyes were at a 32) to one eye being 22 and one 23.  Still high but the Dr. is happy with it and says that the immediate danger to my eyes is gone.  I'll have to be rechecked every 4 to 6 months for the rest of my life since this jump happened in a bit over 2 months.  Now I mentioned that being on prednisone kind of threw a monkey wrench in things.  Prednisone can do really wonderful things for the body but it can do really horrible things as well.  It does mess with the IOP so I have to make sure anytime I'm put on Prednisone it's very necessary.  As the nurse said respiratory does beat vision so there is that.  I was also diagnosed as being severely anemic.  When I saw my PA to discuss the ENT referral I was telling her that in spite of the Hashimoto's and my fibromyalgia being treated and monitored very closely I was still exhausted almost constantly.  She did some routine blood work and I asked her to check for anemia as well since I have menorrhagia due to uterine fibroids.  Ding Ding ding!  We have a winner!  What I also didn't know is that my grandmother was very anemic and had to get blood transfusions on a somewhat regular basis.   My hemoglobin came back at 7.4.  So I'm on iron supplements and a high iron diet.  My friend Susie reminded me that cooking in cast iron would also help so our skillet has been getting a good workout.  I go back for my follow up blood test the end of next week.  I'm keeping my fingers crossed!   There have also been some big changes with my fibromyalgia meds.  I was taking gabapentin which really was working for the pain aspect in a lot of ways.  I wasn't pain free but it was most definitely helping.  I did notice some nasty side effects and then my sister shared some information with me about what gabapentin does to your brain.  I may not have a whole hell of a lot going for me but my brain most definitely works well and I'd like to keep it that way.  So now the search for a drug that can keep the pain levels down while having a minimum of side effects including long term is on.  Again- keeping my fingers crossed.  So that is the current situation here.  Just hoping to get all the pieces lined up!

Monday, July 18, 2016

RIP Saint

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Today we lost this sweet, sweet soul.  I can honestly say that I've never had to deliver such sad news to Princess Bear (PB) before.  Yes, we also lost our Dalmatian, Spot, 6 years ago.  A few differences though.  Spot had been born deaf and didn't deal with fast movements well.  Therefore, on the whole, PB was not allowed much interaction with Spot.  The occasional petting but not much else.  I also think there is a huge difference between losing a pet when you're still pretty little versus having a dog for 13 years.  Saint (and this dog acted so Saint- like especially with kids) was very much a huge part of PBs everyday world.   She was responsible for Saints water bowl.  She would take Saint out to play in the yard whenever she could.  It brought about so many tough questions.  I still have no idea how to honestly explain cremation without scaring the hell out of my child.  She was very upset that she didn't get to see Saint this morning before my dad took her to the vet but I honestly didn't think this was going to be the outcome.  She did ask if I would take her to the vet and let her pet her one last time.  I didn't think since Saint was already gone that was a good idea.   Our vet did make a plaster print of Saint's paw for PB to have.  We have a few days to decide whether to decorate it or not before "baking" the print to make it solid.  She has already asked when Saints ashes are coming home.  She's working on making the cat bat shit crazy since she's mourning the loss of Saint and doesn't want the cat to be out of her sight.  Unfortunately the cat isn't a fan of most humans.  It killed me that she didn't want to come home because her dog wasn't here.  I know that in time she'll move on from this and start remembering all the little things about Saint that she liked or even made her crazy.  I just wish she didn't have to hurt in the mean time. 

Sunday, June 26, 2016

13! She's 13!

Princess Bear (PB) turned 13 on June 11th.  Where oh where has the time gone?  It was a bit tricky trying to get a date for all of the important people in her life to come together and celebrate.  Today was her birthday party and she had a ball!  It was held at Bass Pro Shop/ Uncle Buck's and they are so on top of everything and a good time was had by all!!!  Here's a  slide show:


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Sunday, May 29, 2016

Another one bites the dust!

Another school year that is!  I can say it was actually bittersweet.  Usually I'm so glad to have Princess Bear (PB) at home for 2 1/2 months and not worry about the bullshit happening at school or how broken our school district is.  This year she had a really good teacher.  Not great but really, really good.  One who tried so hard to work with each child's abilities and truly cared about the kids.  It was a very refreshing change.  Unfortunately that teacher is moving to NC.  The teacher from the class that they work in tandem with is also trying to find a job closer to home (She commutes 50 minutes each way).  It may sound awful but I'm hoping that she returns in the fall because the idea of this special needs program breaking in 2 new teachers literally is panic inducing.  My dad & I even discussed the idea of homeschooling PB for her  8th grade year if there are 2 new teachers.  I don't think that's in her best interest.  Let's just say that I'll be watching the situation very carefully.

There are a couple of things we do at the beginning and end of each school year.  Of course there are the pictures:




Then there are the surveys.  At the beginning of the year there are 3 different surveys I found via pinterest.  They are similar but different enough that its worth the time doing all 3.  Questions that PB answers herself about what she hopes for the school year, what her various favorites are, how tall she is and things like that.  Then there is a survey (just one) that covers the same things at the end of the school year.  It's so much fund to pull them out and see how her thoughts have favorites have changed as well as her handwriting throughout the year.

PB's summer is shaping up to be as busy as usual.  We are not babysitting my youngest nephew on Wednesdays this summer.  That might be the only disappointing part of it.  PB and Luke are very close and they really looked forward to their together time.  PB is going to be doing 5 of the 7 weeks at Michael's Camp Creativity this summer.  She's done there summer programs for the past 5 years or so.  The classes are Monday, Wednesday and Friday from 10am to noon.   It's $5 per class of 3 classes for $12 if you sign up in the store.  You can find more info HERE.  She's also starting private guitar lessons.  She took lessons through the park district last summer.  She had a ball but didn't learn very much.  She did meet a lovely girl, Kayla, so that's nice.  My mom and dad are sponsoring those lessons.  She has the first one this Tuesday.  She will have swim lessons twice a week and is continuing her piano lessons.  She did try to convince us that she wants violin lessons (Pretty sure this is because Pete's daughter Jillian from the Farm Kings takes violin lessons). We might add drum lessons into the mix since we still have most of the parts to my old drum set in the attic and my old drum teacher still gives lessons.  I did try to get her into crochet or knitting but that just won't work this summer.  Maybe in the fall.  The lessons started before school was out and were Saturday mornings.  Most Saturday mornings in the summer and early fall we hit one or two of our favorite farmers markets and then spend time putting food together to eat or freeze.  I'm also planing on doing more canning this summer.  PB says as long as she gets her fill in pickles she doesn't care.  PB still has Bible study once a week as well as youth group.  This year she is old enough to be a teen volunteer at VBS so she's very exciting about that.  I spend a lot of time working on my cross stitch projects this time of year since I'm spending so much time waiting for PB while she's doing her various stuff.  I'm working on a great Halloween project  right now and need to get some Christmas projects going.

So here's to another school year in the can and wishing for a great summer!  

Wednesday, April 6, 2016

Luke Bryan made my daughter a happy camper!

Ok- I'll go into this more on a different post.  Sorry I once again disappeared.  My computer was in need of a major overhaul.

Now on to the good stuff!  This one is deserving a post all its own.  I touched on it briefly when I talked about the Luke Bryan concert.  We had contacted his management team but never heard anything from them.  Almost 2 weeks ago I went to the mailbox and there was a FedEx mailing envelope jammed next to our mail box.  The top was ripped open and I thought to myself "wtf???".  Bring it in and look at the address.  It's not any shopping my mom & I had done & I don't recognize the return address.  I reach into the envelope since it was already open and a personalized autograph from Luke Bryan is in my hand.  Considering that the mailer had been ripped open it was by the grace of G-d that the picture was still in there!  I honestly can't think of a time that I've been so excited for my daughter.  I actually considered pulling her out of school early that day so she could see it.  I held myself back and had it on our kitchen table turned over when she got home.   This is Princess Bear receiving her personalized autographed picture from him.




After I stopped taping she started turning all red and almost started crying.  She was thrilled beyond measure.  Her picture is now framed and in a place of honor.  It was cute when before it was framed my sister went to pick it up and look at it and PB was like "fingers!  Watch your fingers!!!!".  I'd heard that Luke Bryan is a stand up guy and gives back to his fans.  Now I'm thrilled to say that I know that.  

Tuesday, March 8, 2016

What in the bloody hell.....

are sinuses for and why are they such a pain in my a$$???  For real!  I've had chronic sinus problems since I was very little.  It's a familial thing.  My sister & I spent huge amounts of our childhood taking Dimetap when it was still a prescription drug.  I had my first sinus surgery when I was 19.  It's basically the equivalent of having your face roto rootered.  It sucks.  Then (at least back then) you returned 24 hours post op for the Dr. to take the packing out of your nose.  I still remember walking into the office & sitting in the exam chair and the nurse hands me a huge metal bowl.  I just gave her a WTF look and my mom turned her back.  The Dr then yanked out the packing.  Yeah- the bowl was very necessary as blood then started gushing, seriously gushing, out of my nose.  Good times!  So when they started telling me a few years ago that I needed to have sinus surgery again my stance become something along the lines of





Then about 2 years ago it got to the point that I was spending more time sick with sinus infections than not.  I was spending a ton of time in either my GPs office or the ENTs office.  It didn't matter what was tried but within a week of being off antibiotics I'd be sick again.  I finally agreed to do the surgery after our trip to Disney.  Yeah the trip that was 15 months ago.  Then my insurance changed and there was not an ENT within 2 hours.  So I muddled through.  I went to my GP last week for the 2nd time in the last 30 days for a sinus infection last Thursday.  She sent me for a CT scan.  The results are as jacked up as they were 2 years ago.   One maxillary sinus cavity is completely blocked and the other is partially blocked and has thickening from the previous sinus surgery.  I'd already started hounding my insurance agency about a month ago for the lack of Drs in my provider area.  I haven't been able to get into 3 specialist that I've needed to see.  Based on this last CT result and my harassing phone calls to my insurance company 1 Dr is now available.  The ENT.  I'm sure I won't get in quickly and if I have to wait until the beginning of summer to have the surgery I'm ok with that.  Princess Bear's (PB) summer schedule is busy but not as crazy as the school year.  Also with my dad being retired he can help with some of PBs summer stuff while I'm recovering.  On the upside I did find out that they no longer pack your nose like that anymore!  Something that is making the prospect of surgery a bit easier!  

My sister is having her thyroid surgery later this week.  My parents are going to be spending the night with my nephews.  I tried explaining it would make more sense for me to stay there since I've actually put them to bed any number of times but as it stands they're staying there.  Don't get me wrong.  My parents are wonderful Grandparents to PB and my nephews.  They just aren't the kind of Grandparents that keep the kids over night or spend more than a few hours with them.  Actually the last time it came down to them having to feed my nephews and get them ready for bed it lead to numerous phone calls asking me what they were supposed to be doing.  It should be interesting.  Oh- all of this is happening while my moms knee is hugely swollen.  She has an MRI tomorrow.  She can barely walk level surfaces so there is no chance of her being able to walk upstairs to put the boys down.  My dad because of the stenosis in his spine doesn't do stairs repeatedly well.  I'm thinking at the very least a great bottle of wine & some good painkillers are going to be needed.  

So that is the story here.  It's time to check out what's happening in the blog o verse and crash.  Take care!