Friday, June 13, 2014

Blessings abound

After a very long almost 2 weeks and damn near stalking the Dr since she was almost a week late giving me Princess Bear's (PB's) test results life is grand.  The number that would definitely indicate PB had a Pituitary tumor was in normal range.  We still have to go back in October so they can redo all the blood tests to make sure everything is still in normal ranges.  The Dr.  is still nervous that she's shot up so much height wise this year.  They did say that her bone age scan has her at a 13 year old level so she's 2 years ahead of that since she turned 11 on Wednesday.  There is still some following up we need to do with a geneticist but luckily we can do that here in Peoria.

As I mentioned PB turned 11 the other day. I did the cover the door in streamers routine.  I stayed up until 2am to make sure she wouldn't get up again before starting the door.  It was awesome when she opened her door in the morning.  I told her Happy Birthday and told her to come in to my room.  She just stood there half asleep and a bit dazed saying she couldn't get out.  I told her to rip it and she had a ball!   It was quite the Polish birthday as it was an all day free for all of whatever she wanted.  For breakfast she asked for hash browns which are her favorite.  Then she opened her gifts from me.  (why oh why do I purchase gifts that wind up requiring me to work on them??? LOL!).  We played for awhile and then went shopping with my mom.  She scored some new stuff at Target and then we went to lunch with my mom, sister & nephews.  PB has become a big fan of musicals and she wanted the Hugh Jackman version of Oklahoma and the Julie Andrews version of The Sound of Music and her Aunt gave her those as well as some money for her Disney trip.  After lunch we came home and watched Oklahoma.  After that it was time to go to the Riverplex for a workout and then dinner.  My uncles partner is the manager at Olive Garden and Kiernan adores her Uncle Gerald.  So it was off to pick up the birthday cake at DQ and take it to Olive Garden.  Her uncles gave her a Disney Princess Visa gift card to take to Disney with her.  She thinks she's pretty hot stuff!  As part of her birthday gift I ordered a Cinderella costume for her to wear on our trip to Disney.  She'll probably wear it when she goes to Bibbidi Bobbidi Boutique followed by lunch at Cinderella's Castle.  She's also going to a very special tea party so I don't know if she'll wear the Cinderella costume again or a different one. 

Birthday Door Surprise
  photo Kierbirthdaydoor_zps4d128dbb.jpg
Birthday Lunch  photo Kierbirthday_zps2ac1a2a4.jpg PB's Cinderella Costume  I can't wait for it to arrive so she can try it on!
  photo KiernanCinderella2_zpseeb92eb8.jpg

Monday, June 2, 2014

In shock

We've known for awhile that Princess Bear (PB) is growing quickly.  She's 10 years old and over 5'5" tall.  Today we had an appointment with her endocrinologist.  I started getting concerned when the resident kept on poking and prodding PB asking if it hurt.  The Dr. came in and quickly let me know that something is pretty wrong with PB.  She sent PB for blood work and a bone age scan x-ray.  She kept on mentioning a pituitary tumor.  How in the hell can my baby possibly have a tumor in her head??!!!???  And when in the hell is my child ever going to catch a break??? 

The Dr.  said she should have the results by the end of the week and I'd most likely hear from her Friday.  Then we'll have a better idea of what the next step will be.  She had me make a follow up appointment for 4 months from now but cautioned me that we'd probably be back much sooner.  That's a far cry from having appointments once every year or 18 months. 

So, I'm sitting here crying because PB is sleeping and its my time to be weak.  We're not telling her anything until I've talked to the Dr. again and have a better idea of what we're dealing with here.  Until then it will be life as normal.  How do you do normal when you feel like your world is spinning out of control? 

Sunday, June 1, 2014

Go Hawks!

Hanging with my nephews yesterday!

I think Luke is going to be ready for a mohawk & some Docs in no time at all!!!